Check us out in Parents Magazine
Jackson, MS (April 26, 2011) – Stop SMA, a central Mississippi nonprofit organization, was recently featured in the “Power of Parents” section of Parents Magazine May issue. Parents Magazine is the oldest national, award-winning parenting publication in the U.S. and has an approximate readership of 15 million. The publication features articles on children’s health, education, safety and behavior as well as parenting issues and challenges.
Stop SMA was established in 2009 by Jeff and Dee Horton of Brandon after the couple’s daughter Evie was diagnosed with SMA in 2008. A year later, the couple’s nephew, Reese – son of Matt and Cortney McDonald – was also diagnosed. After doing research, the Horton’s and the McDonald’s realized few people, including many medical professionals, were familiar with the disease.
SMA is a genetic disease that weakens the muscles, making it difficult or, in most cases, impossible for a person with the disease to move around and perform routine physical tasks like getting dressed. People with SMA may be able to stand when they are very young, but few ever possess the ability to walk. SMA gets worse over time and is often fatal due to related respiratory and pulmonary complications. SMA is the number one genetic killer of children under two. One in 40 people carry the gene that causes SMA and one in 6,000 babies are born with the disease. SMA can affect people of all races and genders.
“We saw a need to educate the public and the medical community of this deadly disease and to raise money for ongoing research for finding a treatment for SMA,” said Horton, who also serves as president of the organization. “We are very excited about this exposure and the opportunity to educate Parents Magazine readers about SMA. We have already heard from several readers that have spotted our article and the SMA community is thrilled with our efforts to spread awareness.”