We are a non-profit organization that wants to stop Spinal Muscular Atrophy. We raise money and awareness by hosting events and educating the public about SMA. A treatment for this otherwise untreatable disease is not far flung theory; It is almost a reality. Our mission is to close the gap.
We are located in central Mississippi. Our events are not just great family fun (they are!), but they are the vehicle for raising money for SMA research and awareness about SMA. Find out more about upcoming events.
Learn about SMA, get personal by getting to know some of the families in our community, and find out how you can help.
Our Story
Jeff and Dee Horton discovered June 2008 that their daughter, Evie, has Spinal Muscular Atrophy. Few people that they talked to about SMA had ever heard of the devastating disease. Even many in the medical profession were not familiar with SMA.
But then neither was Jeff or Dee. “After you learn about the symptoms and the surprising stats of how common it is, you begin to understand how awful the disease is, what it does to children and their families. However, you keep digging and you realize how close we are to possible treatments,” Jeff recalled.
So we ask, what if SMA was well known and supported like other diseases. What would the treatment possibilities be like then? To Jeff and Dee, the equation was simple:
Awareness + Support = Treatments
Jeff and Dee desire the highest quality of life for their daughter. They want to be able to tell her, when she was old enough to understand, that they did everything they could to ensure she had a healthy and full life. So with this goal in mind they decided to become advocates for all families facing SMA and change the prognosis of this disease forever.
July 2009, Jeff and Dee started the appropriate paperwork and began a new journey. A journey to Stop SMA.
